Chronic kidney disease (CKD) is known as chronic because the damage to your kidneys happens slowly over a long duration of time. A lot of people are frightened to learn they have CKD since they think that all kidney disease contributes to dialysis. For many patients, the only way to be diagnose this disease is to perform a specific blood and urine tests. The earlier you know you’ve got CKD, the quicker you can prevent severe damage to your kidneys.
Parkinson’s disease is a form of movement disorder, the associated non-motor symptoms can frequently be overlooked. Knowing the causes and associated symptoms of many rare or complex diseases help patients to deal with the consequences and often improve significantly their quality of life.
There are many disease education programs targetted to patients with a particular disease. These programs often include tools and information for families and professionals. An example is the program created by the National Kidney Association and is intended to supply the information that people need to comprehend diagnosis and make informed decisions. Most of these programs are available at no cost. Educational and community-based programs and strategies are intended to reach people beyond traditional medical care settings. As a very first step, disease management programs and groups will need to recognize a population, in addition to how to enroll patients.
Most families with patients with a particular disease join this programs to gather more information and later become advocate to inform others new people about the disease. These groups are also important in collaborating with the medical and scientific community to discuss difficulties and sometimes even to participate in new clinical trials allowing a faster development of a cure or treatment.